Randy & Tracy Palier have two children, Evan & Lily. Lily was born with a rare disease called SMA or Spinal Muscular Atrophy. She & her family have come such a long way. Only 1-11,000 are born with SMA so the Palier’s have had to make connections with other parents to seek understanding. It’s still a tough battle, but the Parlier’s don’t want other parents to struggle so much when a child is born with a rare disease. So they went to the capital to meet Illinois State Representative Dan Swanson during Rare Disease Day. Listen to hear more about the Parlier’s trip to Springfield below…
